PRN: Sobi Supports The Rare Project to Increase Awareness About Rare Diseases

(Sobi) is proud to sponsor "The Rare Project", a project initiated by the not for profit organisation Same But Different.

Persone Oskar Bosson, Neil Dugdale
Luoghi Europa, Medio Oriente, Russia, Inghilterra, Cambridge, Regno Unito, Manufahi, Wé
Organizzazioni General Manager for Sobi Ltd, Swedish Orphan Biovitrum Ltd, Unione Socialista Indipendente
Argomenti internet, impresa, pubblicità, commercio

24/feb/2016 13.41.56 PR Newswire Turismo Contatta l'autore

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Sobi Supports The Rare Project to Increase Awareness About Rare Diseases

 
[24-February-2016]
 

CAMBRIDGE, England, February 24, 2016 /PRNewswire/ --

To highlight Rare Disease Day 2016 on 29 February, Swedish Orphan Biovitrum Ltd. (Sobi) is proud to sponsor 'The Rare Project', a project initiated by the not for profit organisation Same But Different. 'The Rare Project' is an online and real world photo exhibition encouraging people to get to know young people and children with rare diseases for their personalities and not their condition. Through photography the personalities of young people and children with rare diseases are showcased. The photographs are the work of Ceridwen Hughes, the founder of Same But Different.

     (Logo: http://photos.prnewswire.com/prnh/20160224/336800LOGO )

     (Photo: http://photos.prnewswire.com/prnh/20160224/336801 )

The photos can be viewed via the following link: http://www.samebutdifferentcic.org.uk/rare-project

"We are proud to support the raising of awareness of rare disease through collaboration on inspirational initiatives like this one. We aim to place patient value at the heart of what we do. The inspiring stories that patients and families are sharing in 'The Rare Project' only energise us further to strive to do more for rare disease patients," said Neil Dugdale, General Manager for Sobi Ltd.

'The Rare Project' is supported by several UK charities including Rare Disease UK, Genetic Alliance and Climb, (Children Living with Inherited Metabolic Diseases) as well as Big Lottery Wales and Sobi.

About Sobi 
Sobi is an international specialty healthcare company dedicated to rare diseases. Sobi's mission is to develop and deliver innovative therapies and services to improve the lives of patients. The product portfolio is primarily focused on Haemophilia, Inflammation and Genetic diseases. Sobi also markets a portfolio of specialty and rare disease products for partner companies across Europe, the Middle East, North Africa and Russia. Sobi is a pioneer in biotechnology with world-class capabilities in protein biochemistry and biologics manufacturing. In 2014, Sobi had total revenues of SEK 2.6 billion (USD 380 M) and about 600 employees. The share (STO: SOBI) is listed on NASDAQ OMX Stockholm. More information is available at http://www.sobi.com .


For more information please contact:
UK Media
Neil Dugdale, General Manager UK
T: +44(0)1638722387
E: neil.dugdale@sobi.com


Media relations    
Oskar Bosson, Head of Communications
T: +46-70-410-71-80
E:oskar.bosson@sobi.com 

 

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